Saturday, February 5, 2011

Fighting with Lyme Disease and Babesiosis

I'm tired...  Can we do this later?
What will they say....  Will they think I'm a super nut, fruit cake, or just plain depressed?  One Misdiagnosis after another and new treatment plan after another.  Then, finally found a doctor educated enough (so I thought…), to test for Lyme disease.  He asked me to look online to see the “bulls-eye” rash, commonly associated with Lyme, and if I remembered having one…   I did remember it, from 5 years before, but the doctor said “The test results show you have only been infected a short period of time, you’re only in the first stage of the disease, the rash you had must have been from something else…” Well, I just went along with it…  He prescribed a hefty dose of antibiotics for a month and I saw him every week, feeling worse every day…  After I finished the antibiotics I asked him, “When I will I start improving?”  He told me “These things take time; you’re recovering from a serious infection.”  After one year, still having arthritis symptoms at 24 years old, I informed the doctor that I had only gotten worse since the treatment…  He replied, “We got it the first time, but maybe you got it again…”  However when the Western blot came back negative, the symptomatic diagnoses would began…

 In actuality, a fight for my life had just begun…  For almost 8 years now I have done my own research, gone to multiple doctors, even had psychologists to verify my sanity.  I felt like I was losing my mind, the pain and fatigue were wearing me down.  In my state, I had given up hope to find a Lyme Literate Medical Doctor (LLMD).  Fortunately, my therapist believed me, and pushed me to prove them all wrong…  I thank God for her kind heart.   Since she was the one that got the phone number to the doctor that took my insurance, and clinically diagnosed me….  

Now only 2 months into my treatment for the co-infection Babesiosis, and maybe even years left to my treatment, I am euphoric!  I thought I would never hold a rolling pin again, or ever be as detailed as I was again…  All of life’s simple pleasures seem heavenly now…  

 If you have been treated for Lyme disease and are not better or getting worse, 
YOU NEED A NEW DOCTOR! 
You can find a Lyme Specialist here:  

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